Resources
Get the right information
Research, Websites And Social Media.
There is a huge range of information available online on pelvic pain and endometriosis, it can be hard to know where to turn! Here are just a few of our preferred information providers and resources
Pelvic pain
- Pelvic Pain Booklet 2017 by Gynaecologist Dr Susan Evans – a great simple introduction to the varying symptoms we commonly see with persistent pelvic pain https://www.drsusanevans.com.au/wp-content/uploads/2018/11/Pelvic-Pain-Booklet-2017.pdf
- Pelvic Pain Foundation of Australia (PPFA) https://www.pelvicpain.org.au/for-women/
- Women’s Health Research Institute Australia https://www.whria.com.au/for-patients/pelvic-pain/
- “Healing pelvic pain: Transforming the trauma of period pain, endometriosis and chronic pelvic distress” book by Gynaecologist Dr Peta Wright
- this book may appeal to you if you are interested in exploring the role of stress and trauma in pain, and non-surgical options to manage pain
Endometriosis
- Endozone: https://www.endozone.com.au/
- this is a great evidence based website with links to information about diagnosis, treatments, and common symptoms such as fatigue, as well as tips for managing with school/work.
- EndoActive: https://endoactive.org.au/free-videos/
- this website has a collection of free video presentations from respected Australian gynaecologists and other specialists, targeted at health professionals and those living with endometriosis
- Endometriosis Australia: https://endometriosisaustralia.org/
- also check out their podcast series “Living with Endo”
- Endo Help Foundation: https://endohelp.com.au/
Understanding chronic pain and pain neuroscience
Curable app – https://www.curablehealth.com
- Curable is an online program and app designed to help people with persistent pain reduce their symptoms and calm their nervous system. It utilises audio lessons and a wide range of evidence based techniques for reducing symptoms such as somatic tracking, cognitive behavioural therapy and meditations
Ella health https://www.ellahealth.co
- A 6 week online/app pain education program specifically designed for pelvic pain
This Way Up Chronic Pain Program
https://thiswayup.org.au/programs/chronic-pain-program/
- This Way Up has a variety of online courses covering a range of mental health conditions and also chronic pain. There are several free courses on wellbeing, if you would like to access other courses which have a fee, you can ask your GP to refer you for free access.
“ Why pelvic pain hurts: Neuroscience education for people with pelvic pain” https://www.amazon.com.au/Pelvic-Adriaan-Sandra-Carolyn-Vandyken/dp/0985718684
Pain management network: Introduction to chronic pain https://aci.health.nsw.gov.au/chronic-pain/for-everyone/introduction-to-pain
Healing pain podcast series – https://podcasts.apple.com/au/podcast/pain-science-education/id1112764695
Retrain pain https://www.retrainpain.org
Pelvic floor and physiotherapy
Physiotherapy and pelvic pain https://endoactive.org.au/free-videos/
The following resources have a collection of free guided breathing and stretching exercises to assist with pelvic pain. We recommend you see a pelvic health physiotherapist for personalised guidance.
PPFA easy stretches to relax the pelvis https://www.pelvicpain.org.au/wp-content/uploads/dlm_uploads/2024/07/Easy-Stretches-to-Relax-the-Pelvis-5_5_2023.pdf
Breathing exercises with a focus on pelvic floor https://www.bien.com.au/blogs/breathing-and-pelvic-floor-relaxation
Endozone pelvic floor relaxation and stretches- https://www.endozone.com.au/treatment/pelvic-floor-muscle-relaxation
https://www.endozone.com.au/treatment/stretches-for-pelvic-pain
Hip and Pelvis Stretches for Easing Pelvic Pain
Sexual dysfunction / pain
Jean Hailes website: Painful sex
https://www.jeanhailes.org.au/health-a-z/sex-sexual-health/painful-sex-dyspareunia
“ When Sex Hurts: Understanding and healing pelvic pain” https://www.amazon.com.au/When-Sex-Hurts-Understanding-Healing/dp/0306827425
Fertility
Julia Argyrou Know Endo Webinar series:
- Planning to conceive with endometriosis https://www.epworth.org.au/our-services/endometriosis-centre/planning-to-conceive-with-endometriosis
- Egg freezing and endometriosis https://www.youtube.com/watch?v=kyG_xU9-FYA&t=1716s
Nutrition and gut health
Nourish for endometriosis https://ohwellco.com.au/endo-hub
- 6 month access to an online program by dietitian Nadia Maxwell
“Nerva” app – self directed gut hypnotherapy https://try.nervaibs.com
Support for endometriosis and pelvic pain
QENDO https://www.qendo.org.au
- Support group for endometriosis and pelvic pain, including 24/7 support line, mentorship, support for carers and an app.
Social media accounts
Social media can be a great resource for learning about pelvic pain – but make sure you follow accounts that are evidence based, and make you feel good! Here are some of our favourites
- Dr Jess Theron – pelvichealth.doc
- Matilda health – matilda_health
- Jean Hailes for Women – jeanhailes
- Curable (Pain education) – curablehealth
- Endometriosis Australia – endometriosisaustralia
- Endohelp foundation – endohelpfoundation
- Nadia Maxwell (dietitian) – nadiamaxwellnutrition
- Pelvic Pain Foundation Australia – pelvicpainfoundationaus
- Pain psychotherapy – painpsychotherapy